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<url value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/QuestionnaireResponse?_count=50&amp;_include=*&amp;questionnaire=https%3A%2F%2Ffhir.nhs.uk%2FSTU3%2FQuestionnaire%2FCareConnect-EOLC-1"/>
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<reference value="Patient/1180"/>
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<linkId value="ATP001.1"/>
<text value="Clinical Problems and Advised Interventions"/>
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<linkId value="ATP001.1.1"/>
<text value="ATP Problems"/>
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<valueReference>
<reference value="Condition/93"/>
<display value="Dyspnea"/>
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<linkId value="ATP001.1.2"/>
<text value="Treatment Level"/>
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<valueReference>
<reference value="CarePlan/1"/>
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<linkId value="ATP001.2"/>
<text value="Anticipatory medicines/just in case box issued"/>
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<reference value="Procedure/44"/>
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<linkId value="ATP001.3"/>
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<valueReference>
<reference value="Flag/3"/>
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<item>
<linkId value="ATP001.4"/>
<text value="ReSPECT Care"/>
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<linkId value="ATP001.4.1"/>
<text value="ReSPECT Patient Care Priority - Scale"/>
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<valueInteger value="50"/>
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<linkId value="ATP001.4.2"/>
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<valueString value="Patient is to be treated and made as comfortable as possible."/>
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<linkId value="ATP001.5"/>
<text value="Date of change in list of advance treatment preferences"/>
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<valueDateTime value="2018-08-01T00:00:00+00:00"/>
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<linkId value="ATP001.6"/>
<text value="Professional recording these changes to this list of Problems and Interventions"/>
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<reference value="Practitioner/202214"/>
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<valueReference>
<reference value="Flag/1"/>
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<linkId value="CPR001.2"/>
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<valueString value="The outcome of the CPR would not be of overall benefit to the patient"/>
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<linkId value="CPR001.3"/>
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<valueString value="This person has the mental capacity to participate in making these recommendations. They have been fully involved in the decision making process."/>
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<linkId value="CPR001.6"/>
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<linkId value="CPR001.6.1"/>
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<valueCoding>
<system value="http://snomed.info/sct"/>
<code value="713656002"/>
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<linkId value="CPR001.6.2"/>
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<valueString value="Supporting information not provided."/>
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<item>
<linkId value="CPR001.7"/>
<item>
<linkId value="CPR001.7.1"/>
<text value="Coded entry for people aware of the decision"/>
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<valueCoding>
<system value="http://snomed.info/sct"/>
<code value="975291000000108"/>
<display value="Family member informed of cardiopulmonary resuscitation clinical decision (situation)"/>
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</answer>
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<linkId value="CPR001.7.2"/>
<text value="Textual version of that person or group of people"/>
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<valueString value="Uncle Bob has been made aware of the decision"/>
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<linkId value="CPR001.8"/>
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<reference value="Practitioner/202214"/>
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<linkId value="CPR001.10"/>
<text value="Professional Endorsing Status"/>
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<valueReference>
<reference value="Practitioner/202214"/>
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<linkId value="DIS"/>
<text value="Disabilities"/>
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<linkId value="DIS001.1"/>
<text value="Patient Disabilities"/>
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<valueReference>
<reference value="Condition/94"/>
<display value="Asthma"/>
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</item>
<item>
<linkId value="DIS001.2"/>
<text value="Professional recording these changes to Disabilities"/>
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<valueReference>
<reference value="Practitioner/202214"/>
<display value="Dr K Rodger"/>
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<item>
<linkId value="DOC"/>
<text value="Other Documents"/>
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<linkId value="DOC001.1"/>
<text value="Document Name"/>
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<valueString value="Lasting power of attorney offical document"/>
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<item>
<linkId value="DOC001.2"/>
<text value="Document Location"/>
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<valueString value="Top left drawer in cabinet located in dining room. Documents are inside blue folder."/>
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</item>
<item>
<linkId value="DOC001.3"/>
<text value="Document Source"/>
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<valueString value="Document drawn up at A B Solictors, Newcastle"/>
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</item>
</item>
<item>
<linkId value="EOL"/>
<text value="EOL Register"/>
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<valueReference>
<reference value="Flag/2"/>
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<linkId value="FUN"/>
<text value="Functional Status"/>
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<valueReference>
<reference value="Observation/10765"/>
<display value="Karnofsky Performance Status score (observable entity)"/>
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<linkId value="LPA"/>
<text value="Lasting Power of Attorney"/>
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<linkId value="LPA001.1"/>
<text value="Lasting Power of Attorney For Health and Welfare"/>
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<valueReference>
<reference value="Flag/4"/>
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<linkId value="LPA001.2"/>
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<valueReference>
<reference value="RelatedPerson/71"/>
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<linkId value="PREF"/>
<text value="Preferences"/>
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<linkId value="PRE001.1"/>
<text value="Preferred Place Of Death"/>
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<linkId value="PRE001.1.3"/>
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<valueString value="At home with family"/>
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<valueString value="To be made comfortable and looking out onto garden"/>
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<linkId value="PRE001.3"/>
<text value="Domestic Access and Information"/>
<answer>
<valueString value="A key safe is provided to allow access to the property. Carer and related contact has code."/>
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<item>
<linkId value="PRE001.4"/>
<text value="Preferences Date Recorded"/>
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<valueDateTime value="2019-02-11T00:00:00+00:00"/>
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<linkId value="PRE001.5"/>
<text value="Preferences Author"/>
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<valueReference>
<reference value="Practitioner/202214"/>
<display value="Dr K Rodger"/>
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<linkId value="PRO"/>
<text value="Prognosis"/>
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<valueReference>
<reference value="ClinicalImpression/1"/>
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<id value="1180"/>
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<lastUpdated value="2019-03-05T11:37:07.929+00:00"/>
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<extension url="https://fhir.hl7.org.uk/STU3/StructureDefinition/Extension-CareConnect-NHSNumberVerificationStatus-1">
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<system value="https://fhir.nhs.uk/Id/nhs-number"/>
<value value="9658220142"/>
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<active value="true"/>
<name>
<use value="official"/>
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<use value="home"/>
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<system value="http://hl7.org/fhir/v3/MaritalStatus"/>
<code value="S"/>
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</maritalStatus>
<generalPractitioner>
<reference value="Practitioner/203511"/>
<display value="Miss Nichole Gilbert"/>
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<reference value="Organization/200242"/>
<display value="HSCIC test Practice"/>
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<id value="202214"/>
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<lastUpdated value="2018-09-19T09:31:07.846+00:00"/>
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<identifier>
<system value="https://fhir.nhs.uk/Id/sds-user-id"/>
<value value="C4012900"/>
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<active value="true"/>
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<family value="Rodger"/>
<given value="K"/>
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<id value="93"/>
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<lastUpdated value="2019-02-27T14:01:19.145+00:00"/>
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<identifier>
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<value value="crm1"/>
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<coding>
<system value="http://snomed.info/sct"/>
<code value="267036007"/>
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<text value="Breathlessness"/>
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<reference value="Patient/1180"/>
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<reference value="Practitioner/202214"/>
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<lastUpdated value="2018-11-02T17:04:34.569+00:00"/>
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<identifier>
<system value="https://fhir.midyorks.nhs.uk/CarePlan/Identifier"/>
<value value="blm1"/>
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<status value="active"/>
<intent value="plan"/>
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<coding>
<system value="http://snomed.info/sct"/>
<code value="736373009"/>
<display value="End of life care plan"/>
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<text value="End of life care plan"/>
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<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
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<start value="2018-07-31T23:00:00+00:00"/>
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<author>
<reference value="Practitioner/202214"/>
<display value="Dr K Rodger"/>
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<code>
<coding>
<system value="http://snomed.info/sct"/>
<code value="702779007"/>
<display value="Emergency health care plan agreed"/>
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<text value="Emergency health care plan agreed"/>
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<status value="not-started"/>
<description value="[18 Sept 2018] This plan is known to the Harrogate Palliative Care Team. If advice needed Monday-Friday 0830-1700 contact the team on 01423 553464. Outside these hours contact Saint Michael's Hospice (Harrogate) on 01423 872 658. [21 Nov 2018] At risk of hypercalcaemia (Corr Ca+ 3.01 on 20th Nov) - symptoms were increased confusion and drowsiness."/>
</detail>
</activity>
<activity>
<detail>
<code>
<coding>
<system value="http://snomed.info/sct"/>
<code value="445141005"/>
<display value="Nebuliser therapy using mask"/>
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<text value="Nebuliser therapy using mask"/>
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<status value="not-started"/>
<description value="Nebulizer can be used to make patient more comfortable"/>
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</activity>
<activity>
<detail>
<code>
<coding>
<system value="http://snomed.info/sct"/>
<code value="735324008"/>
<display value="Treatment escalation plan"/>
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<text value="Treatment escalation plan"/>
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<status value="not-started"/>
<description value="Wants to avoid hospital admission if possible, but would want to consider options as need arises."/>
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</CarePlan>
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<lastUpdated value="2019-03-08T14:07:07.834+00:00"/>
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<coding>
<system value="http://snomed.info/sct"/>
<code value="376201000000102"/>
<display value="Issue of palliative care anticipatory medication box (procedure)"/>
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</code>
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<reference value="Patient/1180"/>
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</Procedure>
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<id value="3"/>
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<lastUpdated value="2019-02-27T14:01:19.507+00:00"/>
<profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/>
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<system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/>
<value value="adrt"/>
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<status value="active"/>
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<coding>
<system value="http://snomed.info/sct"/>
<code value="816301000000100"/>
<display value="Has ADRT (advance decision to refuse treatment) (Mental Capacity Act 2005)"/>
</coding>
</code>
<subject>
<reference value="Patient/1180"/>
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<author>
<reference value="Organization/200243"/>
<display value="MID YORKSHIRE HOSPITALS NHS TRUST"/>
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</Flag>
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<id value="1"/>
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<lastUpdated value="2019-02-27T14:01:18.637+00:00"/>
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<system value="https://fhir.tpp.co.uk/Consent/Identifier"/>
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<reference value="Patient/1180"/>
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<coding>
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<display value="Healthcare Provider"/>
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<reference value="Practitioner/202214"/>
<display value="Dr K Rodger"/>
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<authority value="http://fhir.nhs.uk/Policy/EOLC"/>
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<purpose>
<system value="http://snomed.info/sct"/>
<code value="882981000000105"/>
<display value="Consent given by legitimate patient representative for sharing end of life care coordination record (finding)"/>
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</Consent>
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<Flag xmlns="http://hl7.org/fhir">
<id value="1"/>
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<lastUpdated value="2018-11-30T16:05:53.189+00:00"/>
<profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/>
</meta>
<identifier>
<system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/>
<value value="unusmy8"/>
</identifier>
<status value="active"/>
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<coding>
<system value="http://snomed.info/sct"/>
<code value="450476008"/>
<display value="Not for attempted cardiopulmonary resuscitation"/>
</coding>
</code>
<subject>
<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
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<period>
<start value="2018-07-31T23:00:00+00:00"/>
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<author>
<reference value="Organization/200243"/>
<display value="MID YORKSHIRE HOSPITALS NHS TRUST"/>
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</Flag>
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<entry>
<fullUrl value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/Condition/94"/>
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<Condition xmlns="http://hl7.org/fhir">
<id value="94"/>
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<lastUpdated value="2018-11-02T17:04:35.025+00:00"/>
<profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Condition-1"/>
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<identifier>
<system value="https://fhir.midyorks.nhs.uk/Condition/Identifier"/>
<value value="akm2"/>
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<clinicalStatus value="active"/>
<code>
<coding>
<system value="http://snomed.info/sct"/>
<code value="195967001"/>
<display value="Asthma"/>
</coding>
<text value="Asthma"/>
</code>
<subject>
<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
</subject>
<onsetDateTime value="2002-03-11T00:00:00+00:00"/>
<asserter>
<reference value="Practitioner/202214"/>
<display value="Dr K Rodger"/>
</asserter>
</Condition>
</resource>
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<entry>
<fullUrl value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/Flag/2"/>
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<Flag xmlns="http://hl7.org/fhir">
<id value="2"/>
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<lastUpdated value="2018-11-30T16:05:53.284+00:00"/>
<profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/>
</meta>
<identifier>
<system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/>
<value value="unusmy9"/>
</identifier>
<status value="active"/>
<code>
<coding>
<system value="http://snomed.info/sct"/>
<code value="526631000000108"/>
<display value="On end of life care register (finding)"/>
</coding>
</code>
<subject>
<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
</subject>
<period>
<start value="2018-07-31T23:00:00+00:00"/>
</period>
<author>
<reference value="Organization/200243"/>
<display value="MID YORKSHIRE HOSPITALS NHS TRUST"/>
</author>
</Flag>
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<entry>
<fullUrl value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/Observation/10765"/>
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<Observation xmlns="http://hl7.org/fhir">
<id value="10765"/>
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<lastUpdated value="2019-03-09T12:52:22.059+00:00"/>
<profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Observation-1"/>
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<identifier>
<system value="urn:ietf:rfc:3986"/>
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<coding>
<system value="http://snomed.info/sct"/>
<code value="761869008"/>
<display value="Karnofsky Performance Status score (observable entity)"/>
</coding>
<text value="Performance Status score"/>
</code>
<subject>
<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
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<effectiveDateTime value="2018-07-31T23:00:00+00:00"/>
<performer>
<reference value="Practitioner/202214"/>
<display value="Dr K Rodger"/>
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<value value="90.00"/>
<unit value="score"/>
<system value="http://unitsofmeasure.org"/>
<code value="score"/>
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<entry>
<fullUrl value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/Flag/4"/>
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<Flag xmlns="http://hl7.org/fhir">
<id value="4"/>
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<lastUpdated value="2019-02-27T14:01:19.604+00:00"/>
<profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/>
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<identifier>
<system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/>
<value value="lpa"/>
</identifier>
<status value="active"/>
<code>
<coding>
<system value="http://snomed.info/sct"/>
<code value="816361000000101"/>
<display value="Has appointed person with personal welfare lasting power of attorney (Mental Capacity Act 2005)"/>
</coding>
</code>
<subject>
<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
</subject>
<author>
<reference value="Organization/200243"/>
<display value="MID YORKSHIRE HOSPITALS NHS TRUST"/>
</author>
</Flag>
</resource>
</entry>
<entry>
<fullUrl value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/RelatedPerson/71"/>
<resource>
<RelatedPerson xmlns="http://hl7.org/fhir">
<id value="71"/>
<meta>
<lastUpdated value="2019-02-27T14:09:55.917+00:00"/>
</meta>
<identifier>
<system value="https://fhir.tpp.co.uk/NOK/Identifier"/>
<value value="person1"/>
</identifier>
<patient>
<reference value="Patient/1180"/>
</patient>
<relationship>
<coding>
<system value="http://hl7.org/fhir/v3/RoleCode"/>
<code value="HPOWATT"/>
<display value="healthcare power of attorney"/>
</coding>
</relationship>
<name>
<use value="official"/>
<family value="Kewn"/>
<given value="E"/>
<prefix value="Mr"/>
</name>
</RelatedPerson>
</resource>
</entry>
<entry>
<fullUrl value="https://data.developer-test.nhs.uk/ccri-fhir/STU3/ClinicalImpression/1"/>
<resource>
<ClinicalImpression xmlns="http://hl7.org/fhir">
<id value="1"/>
<meta>
<lastUpdated value="2018-12-03T13:06:05.837+00:00"/>
</meta>
<identifier>
<system value="https://fhir.westriding.nhs.uk/ClinicalImpressionf/Identifier"/>
<value value="akm1"/>
</identifier>
<status value="completed"/>
<description value="Limited life expectancy of approximately one year"/>
<subject>
<reference value="Patient/1180"/>
<display value="MS Emilie KEWN"/>
</subject>
<date value="2018-08-19T23:00:00+00:00"/>
<assessor>
<reference value="Practitioner/202214"/>
</assessor>
<prognosisCodeableConcept>
<coding>
<system value="http://snomed.info/sct"/>
<code value="845701000000104"/>
<display value="Gold standards framework prognostic indicator stage A (blue) - year plus prognosis (finding)"/>
</coding>
<text value="Limited life expectancy of approximately one year"/>
</prognosisCodeableConcept>
</ClinicalImpression>
</resource>
</entry>
</Bundle>
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